Mum faces SIX YEAR wait for kidney transplant


Ayesha Edmondson is on a crusade to change her own life and hundreds of others.

Twenty three years ago, at the age of 25, during her first pregnancy, she developed kidney problems. The disease she was diagnosed with has taken a huge toll on her and her family de ella.

A transplant is her best hope of taking back the life she once led. For 12 months she has campaigned to find a living donor for herself and to highlight the need across the region. But due to her ethnicity and the culture within it she may have to wait up to six years for a transplant.

Ayesha, a mother of two, is one of 254 people in Greater Manchester waiting for a kidney transplant.

“I was able to lead a normal life up to stage 3b Chronic Kidney Disease (CKD). As I hit stage 4 everything changed. My fatigue is awful. Also, having been recently diagnosed with fibromyalgia to add to my list of chronic conditions, I’ve had to retire from my 30 year career in retail.It had affected my mental health.

“It’s heartbreaking. But I am having to adjust to the new way of life, living as though we are in Covid restrictions all the time, as my immune system is compromised. I miss being able to have a work life balance and friends. It is difficult as friends don’t actually truly understand the effects of my condition to my entire life.”

Ayesha has not started dialysis yet.

“I need a transplant, although my condition can occur in a new kidney. I am looking for a living donor, whilst on a waiting list”, she added.

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“Both my kidneys are damaged, so a transplant, preferably a living donor one is more suitable for me. My condition is Focal Segmental Glomerulosclerosis (FSGS). It’s rare condition but not totally uncommon. Bangladeshi and Pakistani communities tend to suffer from kidney disease and the wait for me for a deceased donor is likely to be 6 years, or more, double the time for a Caucasian person.



Ayesha Edmondson, 49.

“The Black, Asian and minority ethnic communities do not open up about organ donation in general, however the world is changing around us, in all communities and we as communities need to keep up with it, join in, and start the conversation and save a life today.

“Less people talk about organ donation in BAME minority communities as it is still seen to be a taboo subject.

“I would say why not? If you have a spare organ, you may as well share it and save a life.”

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Kidney transplants have dropped by a third during the pandemic.

This week saw World Kidney Day as nationally 4,600 people, wait for a kidney transplant,

With the figure expected to rise NHS Blood and Transplant is calling on everyone in Greater Manchester to share their organ donation decision and also take a moment to consider living kidney donation.

Kidney transplants have been the hardest hit area of ​​organ transplantation throughout the pandemic, with deceased donor transplants down 22% and living donor transplants down 60% – an overall drop in kidney transplants of 32% in 2020/21, compared to 2019/2020.

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This means around 1,100 fewer patients received a kidney transplant in 2020/21, compared to the year before.

In living donor transplantation, 422 patients benefited instead of the usual 1,000 and there were 500 fewer deceased donor transplants.

Anthony Clarkson, Director of Organ and Tissue Donation and Transplantation, at NHS Blood and Transplant, says: “We know the pandemic is a very worrying time for kidney patients as thousands of people, including 254 patients in Greater Manchester, wait for a life- changing kidney transplant.

“We’re pleased that transplant activity is now recovering and we’re doing everything we can to enable as many transplants as possible to take place as quickly as possible.

“Sadly patients are facing a longer wait and more people need a kidney transplant, so it is more important than ever for people in Greater Manchester to share their organ donation decision with their family to help others after their death. And if anyone in Greater Manchester is willing to consider living kidney donation, they can find out more on our website.”

For more information, or to register your organ donation decision, please visit: www.organdonation.nhs.uk or call 0300 123 23 23. NHS app users can also use the service to record, check or update their organ donation decision.

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www.manchestereveningnews.co.uk

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George Holan

George Holan is chief editor at Plainsmen Post and has articles published in many notable publications in the last decade.

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