Adam Kent was just five-years-old when he was told he had Duchenne Muscular Dystrophy, a genetic condition that his brother Alix, 27, also suffers from
Image: Hannah Cagliarini)
A lifelong Liverpool FC fan with a debilitating muscle disease was given the opportunity to fulfil his dream of holding his scarf above his head at Anfield Stadium, during the club’s Champions League clash with Porto.
Liverpool saw off their Portuguese challengers 2-0, but the night was most significant for the Kent family as Adam Kent, 25, was able to hoist his scarf above his head as the club’s famous anthem, You’ll Never Walk Alone, echoed around the stadium.
Adam was just five-years-old when he was told he had Duchenne Muscular Dystrophy, a genetic condition that his brother Alix, 27, also suffers from.
The condition means that both him and his brother have lost the ability to use their limbs as their health deteriorates rapidly.
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It has robbed both brothers of their ability to walk, use their hands and do everyday tasks such as feeding themselves and brushing their teeth.
Last month the two brothers from Crosby, about seven miles north of Liverpool city centre, were given the devastating news that they are suffering with heart failure, with both of them being described as a “ticking timebomb”.
However, some good news came for the family when Liverpool FC, with the help of disability technology company Rahana Life, gave him the opportunity to use a robotic arm to hold his scarf up for the iconic anthem, made famous by Gerry and the Pacemakers.
Adam has spent the last eight months raising money so he can buy himself the Jaco robotic arm that would mean he could feed himself and more importantly to him, hold his scarf up at Anfield.
But following the devastating news Liverpool reached out and invited him, Alix and their family to Anfield for their Champions League match against Porto where Adam was finally able to fulfil his ambition after the club rented the arm for the evening for him.
Adam’s twin sister Hannah Cagliarini told the Liverpool ECHO the night was “unbelievable.”
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She added: “Tonight was absolutely unbelievable and extremely emotional for myself and family, being able to witness Adam lifting his arm above his head is something we never thought we would ever get to see but it’s most definitely something that will stay with us forever.
“We are extremely grateful to Liverpool Football Club and Rahana Life for giving Adam and my family this incredible opportunity to make this dream come true.
“We still have a very long journey to go for Adams independence but its a fight we will not give up on.”
Before the game, on his Just Giving page, Adam said: “I’m a massive Liverpool FC fan and when I go to the games a dream of mine is to be able to sit and experience holding my scarf above my head and up in the air while listening and singing to, you’ll never walk alone.
“This song has played a big part in my life, and the Jaco Robotic arm would allow me to no longer dream of that moment, I’d be able to live it for real.”
He said the idea of the robotic arm giving him back some independence “sends shivers down my spine.”